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Lost in Transition

Treating rare disease shouldn’t be like a bad game of telephone, with each step generating chaos and confusion. Patient adherence suffers, quality of care diminishes, manufacturers miss out on vital feedback and cost goes up. But imagine if you you could cut past all that. We did.

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February 27, 2017

Dohmen unveils infographic recognizing importance of Rare Disease Day 2017

This week Dohmen Life Science Services joins millions of people in recognition of Rare Disease Day on February 28 – a worldwide effort to raise awareness for the patients and caregivers impacted by rare disease every day. In the United States alone, 30 million people are living with rare disease. For patients and caregivers the road is often long and challenging. It takes an average of five years to be accurately diagnosed and even then, only five percent of rare diseases have an FDA-approved drug treatment. 
 
Take a moment to download the latest DLSS Rare Disease Day Infographic to learn more about the state of the industry, including the latest on patient demographics and drug discovery efforts.

“At Dohmen, every day is Rare Disease Day. That’s why we’ve made it our mission to strengthen and simplify the relationships between orphan drug manufacturers and their patients,” said Dan Johnson, president, Dohmen Life Science Services. 
 
Today, Dohmen experts will head to Washington, DC to attend Rare Disease Week on Capitol Hill. The team will work directly with patients, advocates, lobbyists and fellow industry experts to raise awareness for these small, but powerful patient populations.
 
Also, read our latest white paper for more details about our efforts to support this important industry.